Welcome to House of Light, a blog produced and managed by the staff of Casa de la Luz Hospice. Casa de la Luz ("house of light" in Spanish) is a locally owned and operated hospice, serving the city and surrounding communities of Tucson, Arizona. Through this blog, we hope to offer education, information, and support about caregiving and hospice care to terminally ill patients and their loved ones. For more information, visit the contact us page.

Friday, September 28, 2012

Friday Five: Caregiving and Dementia

The Friday Five is our weekly roundup of links to smart articles and helpful resources across the Web. This week, we focus on the family caregiver and dementia.

1. "The Gift of Caregiving" was a lovely contribution to the Huffington Post this week from a former family caregiver. Robin Amos Kahn shared her experience caring for her ill mother, and the lessons she took away from her years of caregiving. And, we were so pleased to read about the support she received from hospice. Hospice care should support the patient and the family and/or loved ones.

2. This was a great article from Homewatch Caregivers about "Handling Symptoms: Focus." We appreciated the way it read like a what to expect from dementia for caregivers, and offered some helpful suggestions from an expert with the national Alzheimer's Association.

3. This article, "Aware that I'm unaware" in the Wausau Herald was more uplifting than sad. Even as her mind fails her, Julie Krueger continues to battle along, adapting to life with dementia. And, we were so pleased to read about the way she took control of her situation by making her end of life arrangements.

4. Personal blogs can be such honest, heartrending accounts of an individual's struggles, triumphs, and memories. "3 Years and 13 Dumpsters: Cleaning House After Dementia" is written by an adult daughter caring for her father with dementia. She's been blogging since 2009, and I'm sure many family caregivers out there will relate to Joy Walker's story.

5. And finally, a joint resource from the Alzheimer's Association and Lotsa Helping Hands. This "Care Team Calendar" is a great way to manage care needs among multiple caregivers. For primary family caregivers, don't be afraid to take others up on their offers of help. Input your needs and let your friends sign up for specific tasks. It's okay to lean on the shoulders of others every now and then.


  1. I just found your reference to my blog on YOUR lovely blog! Thank you so much and thank you for what you are doing for those dealing with end of life issues. You may not know I'm also a hospice volunteer and bereavement counselor with Providence hospice of WA. I find hospice work so rewarding and needed. Thank you again, I'll post a link to your site on mine! Joy Walker

    1. Joy,

      Thanks for the comment and compliment! Thank you for doing so much for family caregivers by sharing your story, and for those facing the end of life with your work in hospice. We appreciate the link back!

      Carrie Bui
      Communications Specialist
      Casa de la Luz Hospice